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Life, Animated: A Story of Sidekicks, Heroes, and Autism
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Audible Audiobook
Listening Length: 13 hours and 6 minutes
Program Type: Audiobook
Version: Unabridged
Publisher: Recorded Books
Audible.com Release Date: April 1, 2014
Whispersync for Voice: Ready
Language: English, English
ASIN: B00J8SUNB6
Amazon Best Sellers Rank:
Because Ron Suskind and his family have opened up their lives to scrutiny and done unbelievable work reconstructing Owen's life course with impeccable detail, I hesitate to even write a review. How can one review a family's struggle with heartache and the direction they take to help their child succeed?If I could give the book 4.5 stars, I would. 5 for the story and, unfortunately, 4 for the writing. Ron Suskind is perhaps my favorite writer. And, I had the wonderful opportunity to see him speak. It was something I will always remember. I downloaded the Kindle edition in the middle of the night when I saw that he had written a book on a topic that has dominated my life for at least the last 30 years. Unfortunately, the writing is repetitive and overly detailed in Disney phenomena and quotes, It also has way too much philosophizing and overly bold assertions about stages of childhood development. It could be cut by a third and be a more captivating and powerful book. I felt that perhaps the author was so personally invested in the story that he got lost in the weeds. I was also wondering what happened to all the editors who had a hand in the book.Despite my hesitation, I would still like to address the content. I have raised 2 high functioning autistic sons. I also discovered in my 50s that I, too, had some form of autism from birth. There is so much written about the manifestations of autism. Some of it is so inconsistent that it is often difficult to see how it holds together as a single phenomenon. I am impressed that Mr. Suskind clearly captured the quintessential agony of autism, loneliness and yearning for friends. I have never seen this sadness expressed clearly in the vast literature I have embraced over the years. It is like finding a friend who gets it.Again, it is unfair to criticize a family's intellectual constructs when they are faced with raising an autistic child. My two, while both clearly on the spectrum, are totally different; sometimes deliberately differentiating themselves in brotherly animosity. Each required tailor-made, dynamic help to see them to adulthoods in society. My main beef with Suskind, then, is his assumption that all autistic children will, like his son, have a single life-long, abiding interest in fiction, movies, tv, books, with anthropomorphic characters. In the case of his son, Owen, it was Disney movies. Mr. Suskind then asserts that this interest can be universally leveraged by families and helper people to enhance the child's social, emotional and academic progress. He prescribes "affinity therapy" for all autistic children based on the success his family had in using this technique. He even suggests that this form of therapy would result in enormous financial savings for treatment of autism. While it is possible that many autistic children have such interests, it has not been my experience that most do. For example, one of my sons had an obsession with professional sports uniforms and the other with car makes and models. Neither interest would be amenable to "affinity therapy."There is also a subtext of unlimited funds and access to a wide range of resources that were made possible by Suskind's financial success, fame, magnetic personality and access to powerful people. Owen received all kinds of individualized, intensive treatment and experiences that are out of range of even upper middle class families with autistic children. He received care readily from any professional the family deemed to have expertise. Many of us struggle for access to such people, languish on waiting lists and are barely able to afford the care when available. I find it ironic that Mr. Suskind would openly detail his use of money and ties to obtain favor when his books disparage this type of behavior. I know that one will do whatever it takes when faced with devastation of a loved one. Mr. Suskind might say that it is a "good enough reason."I do, however, want to thank the Suskind family for the candor, emotionally wrenching reliving and painstaking work they put into this book. I read it eagerly and fast. It gave me a great deal of food for thought. Most importantly, it inspired me to help my son understand the enormity of his success in being able to go away to college in the face of a childhood marked by substantial autism. I asked him to recognize and applaud his achievement when he is often feeling badly about himself.
Owen Suskind learned to relate to his family and eventually other people, trusting and revealing deep empathy of his own, by programming his young mind with Disney animated classics. By studying the characters' hyper-expressive faces and memorizing their tones of voice, he built a working vocabulary he could eventually extemporize with to express his own ideas. Then over the years he continued watching them, sifting every phrase, every gesture, for nuances of meaning and truth to apply to the people he knew and the situations he faced.I think Owen's story is inspiring not only because of the implications for how parents can help their autistic children (observe their passions and then let them go all out with those, and fully participate with them in those, to build on strengths for acquiring language and other life skills), but also because his methods of piecing together meaning for his life is similar to how most of us do it but just on a more deliberate, miniscule, painstaking scale.There are highlights in this book that go way beyond heartwarming or being merely instructive by example because the author Ron Suskind has shared not only the triumphs but the heartaches and anxieties that life constantly throws into the mix. It is great to see how Owen's struggles truly shaped his family into becoming better people, especially his older brother Walt, who shares one of the greatest insights in the book: that Owen was not a blessing in disguise, but a blessing in plain sight.For parents of autistic children, a book like this helps you feel not so alone in your journey, and it gives hope while also acknowledging how long and arduous the road will be.
An excellent read, far more complex intellectually and emotionally than the documentary. Provides a searing portrait of the maturation process of an autistic child. Not in any way a love-fest for Disney subsidized by the company: the parents' palpable dislike of Disney films and parks themselves and their challenges to look past their own preferences to validate their son's special interest is one strong theme. And the climactic trip to Disney Animation Studios ends in pain rather than conventional uplift as the parents' uninformed ideas about the skills required of a professional animator meet reality. Likewise, raises interesting questions, in subtext, about where to draw the line between helping an autistic child attain life skills to function in a neurotypical-dominant world and perhaps beginning to unconsciously shape the child towards the neurotypical parents' hopes and expectations. Fascinating, as well as a valuable look at the life of an autistic individual who is not particularly interested in math or science.
Ron Suskind's, "Life, Animated" first came to me via an Op-Ed column he wrote in the Times a few weeks back encapsulating the book. I immediately pre-ordered it. His beautifully written account of his son Owen's challenges with autism and the role Disney animated movies played in his development couldn't be more relevant or important to my family. Like Suskind, I have a son Patrick, age 20, with learning disabilities. While not autistic spectrum like Owen Suskind my son Patrick processes the world through the movies of Disney and Dreamworks. Over the years we have watched the movies with him countless times always looking for character nuances, dialogue, and noting the protagonist and antagonist in each plot. In following Suskind's account of Owen's journey we see so much of our own lives and know we are not alone. I also believe there are some potentially very powerful teaching models touched on in the book. Kudos to Suskind for a superbly and compassionately written book and for also bringing public awareness to autism and to how remarkably difficult it is to raise a kid with learning disabilities. Highest possible recommendation.
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